FACTS ABOUT CHRONIC PAIN

Chronic pain can be difficult to deal with – step 1 is gaining knowledge!​

FACT 1: 

The intensity of the pain is NOT ALWAYS directly related to the severity of the underlying condition. 

In chronic pain, your symptoms can become worse without there being anything specifically new wrong with your body. This can be very confusing and worrying. Lots of different factors can make things hurt more. One of the things that can make pain worse is increased inflammation, which can cause peaks in pain without new tissue damage. ​

If you are unsure, seek out a member of the interdisciplinary team. In many instances some education, simple analgesics and staying active will manage the pain.

FACT 2:

Where the pain is on your body, frequently is not where the problem is. 

Nerves carry signals across long distances through the body all the way to the brain, giving it information about bits of skin and specific muscles in all the different parts of our bodies. Along the way to the brain these nerves may pass along sections of inflamed tissue, or become irritated due to pressure, stretch or problems with alignment, and the signal they carry may become scrambled. The receivers in the brain then misinterpret the signal. The brain may not understand why the signal is scrambled,  what is causing the signal to be scrambled, or where along the length of the nerve the scrambling is taking place, so it does the only thing it can – it reports pain at the site that the nerve originates. ​

So, if you have a nerve in the neck that is irritated by pressure, you may have no or little neck pain, but severe pain in your hand, because the brain is reporting the problem of the irritated nerve in the neck, at the site where that nerve starts – the hand. Referred pain such as this needs a specialist interdisciplinary team to help make the diagnosis and recommend appropriate treatment.  ​

FACT 3:

What you feel might be false.​

Let us continue with the nerve in the neck scenario.​

When the pressure is slight and the nerve is just a little bit touchy, the signal is only slightly scrambled. The receivers in the brain struggle to make sense of it and it presents a bit like static or white noise coming from the hand...so you feel ‘pins and needles’ in your hand. ​

If there is a bit more pressure, and the nerve becomes really touchy 
and irritable, the signal can become 
more scrambled. The brain now becomes really worried! It starts reporting a burning, severe pain in the nerve’s distribution - the hand. ​

It is natural to be anxious and worried about ‘pins and needles’, and severe pain- it feels as if there is something terribly wrong with the hand, but really, it frequently is just a scrambled message from a touchy, grouchy nerve. 

FACT 4:

You do not need an injury or illness to develop chronic pain.

Most chronic pain patients do not have pain due to an injury. Pain may rather be due to a chronic condition such as arthritis. However, if you already have a chronic condition, and then suffer trauma, or an injury, this could aggravate the underlying 
condition and be the start of your pain. This may be the first time you becomes aware of discomfort and then, incorrectly, you might attribute the pain as resulting from the injury. ​

The reason this is important for you, is that if you feel that an injury caused your chronic pain, you might want someone to fix it, or be angry about what happened.  You might become quite passive in your approach, experience more suffering, be less resilient and rely on your healthcare providers to give you an answer. Studies show that passive coping strategies (e.g., taking medication, resting, using hot/cold packs) were associated with three times as many healthcare visits and doubling the level of pain-related disability compared with the use of active strategies (e.g. exercise).​

Chronic conditions need active management, with you as the leader of your own team. You must be galvanised into action, to become an active participant in your own health journey, gather a team around you, educate yourself and become a warrior in your fight against pain. ​

WHAT TYPES OF PAIN ARE THERE?

Most people with chronic pain have more than one type of pain and can even have all three. That is why looking for the one magic treatment that is going to fix everything is not helpful – treatment must be multi-dimensional and must be provided by an interdisciplinary team.​

  • NOCICEPTIVE PAIN

    Nociceptors are special receptors that respond to something that is dangerous or potentially dangerous to body structures, such as pressure, chemical changes, extreme temperatures, stretch, or when body tissues do not receive enough oxygen. Nociceptive pain is pain that is caused by actual or potential body tissue damage. It is normally related to a specific injury or event, is short lived and settles as healing occurs.  ​

  • NEUROPATHIC PAIN

    This is pain caused by lesion (damage) or disease of a nerve or a group of nerves, including peripheral nerves (any nerves outside the spinal cord), the spinal cord or the brain. It is typically burning, sharp, shooting pain, is there all the time, does not settle with normal pain medication and follows the pattern of the nerves that are damaged or diseased. ​

  • NOCIPLASTIC PAIN

    This is pain caused by functional and structural changes to how the nervous system understands danger messages. The nervous system becomes over-sensitive and creates pain as a warning even in the absence of ongoing damage or disease.​

TREATING SYMPTOMS

  • TREATING PAIN WITH MEDICATION

    Medication can form part of your plan to manage your symptoms, and your doctor and therapy team will work out an individualised 
    medication plan that is safe and effective for your pain. ​

    All medications have side-effects, some more than others, and many medications are designed for short term use. ​

    Your doctor might prescribe medication to help manage your pain so that you can start making some of the other changes, like exercising more, changing your diet, or getting enough sleep. There are different types of medication such as anti-inflammatories, analgesics (pain killers) and adjuvants (other types of medication). It is important for you to learn what your medication is supposed to do, how much of it you can and should take, and for how long, and learn about potential side effects and risks. 

  • WHEN AND WHY DO I NEED A PAIN PROCEDURE?

    Pain procedures are used in, amongst others, persons with chronic pain secondary to an underlying condition, like osteo- or rheumatoid arthritis. 

    A pain procedure does not treat the underlying condition, it only treats the symptom of pain.

    The aim of a pain procedure is to reduce  your pain so that you can make the necessary lifestyle changes to manage the underlying condition. The effect of the procedure is temporary, and you may need to repeat the procedures when their effect wears off, as your underlying condition that causes your pain, such as osteoarthritis, does not go away.

    Fortunately, procedures that use radio frequency technology can give pain relief that lasts between 6 and 24 months. 

    Becoming an active member of your own treatment team, and working with your doctors and therapists to develop a plan to manage your own health can improve your outcomes and give you longer lasting pain relief from the procedure.

WHEN DO I NEED SURGERY?

Less than 1% of the patients that we see in our chronic pain clinics require surgery. Many of them have already had surgery elsewhere and still come to us for pain relief. The reason this happens is that there might be a reality-expectation mismatch. ​

People have certain misconceptions about surgery that have become urban myth. ​

MYTH 1: SURGERY CAN CURE BACK OR NECK PAIN

Chronic back pain and neck pain is caused, in nearly all persons that suffer from it, from osteoarthritis of the joints of the spine. In many people, there is a genetic predisposition, which means this can sometimes run in families. There is no surgical procedure that can cure osteoarthritis of the spine. If surgeons can identify which joints are involved, they can fuse the bones on either side of the joint and stop the pain for a few years. However, the joints adjacent to the fusion develop osteoarthritis at an accelerated pace, often leading to multiple spinal fusion surgeries and unfortunately in most patients, minimal pain relief.​

MYTH 2: IT IS MY BULGING DISC THAT IS CAUSING MY PAIN

There are multiple studies that
demonstrate that a large proportion of people at all ages have bulging discs on their MRI scans without any pain at all. Therefore, merely having a bulging disc on your MRI scan is not a reason for spinal surgery and your pain is more likely to be from osteoarthritis of your spine, than your bulging disc. 

MYTH 3: PINS IN NEEDLES IN MY ARMS OR LEGS MEANS THAT I AM DAMAGING A NERVE

Pins and needles in the arm and leg are a non-specific symptom and can be associated with several conditions. Nerves that travel down your arm and leg can frequently be merely irritated by nearby inflammation in a spinal joint or from slight pressure from a disc and can be indicative of minor irritation. It may not requires any specific treatment. If you are concerned, your nearest interdisciplinary team will be able to investigate the cause and help you understand whether management is required.​

MYTH 4: I WILL BE PARALYSED IF I DO NOT HAVE AN OPERATION

Pain that travels down the arm or leg and is severe and constant, can be indicative of definite pressure on a nerve, and this might be due to a disc bulge. Fortunately, most of the time, this will settle with conservative management and surgery is rarely indicated. If you are concerned, your nearest interdisciplinary team will be able to investigate the cause and help you understand whether surgery is required.​

MYTH 5: MY DOCTOR TESTED FOR ARTHRITIS, AND I HAVE NONE

Osteoarthritis cannot be diagnosed on a blood test. ​

X-rays, CT scans, MRI scans and radio-isotope scans can help make the diagnosis, but none have 100% accuracy. At the moment, Radio isotope studies have the best success rate for accurately diagnosing osteoarthritis.​

THERE ARE 3 MAIN SPINAL SURGERY INDICATIONS

1. PREVENTING PARALYSIS

In very specific conditions where there is threat to multiple nerves of the spine or the spinal cord and it is unlikely that the condition will self-resolve, or where it may be potentially unsafe to wait, surgery is indicated. Fortunately, these conditions are rare and the symptoms so extreme that the person that is suffering from it, has no doubt that they should be seeking urgent medical attention. 

2. CANCER

The nervous system can also develop cancerous growths and neurosurgeons specialise in doing operations to remove cancer.​

3. BROKEN VERTEBRAL BONES THAT WON'T KNIT

Like all bones of the body, the vertebrae can break. If the break does not heal properly, surgery is sometimes indicated.​

TYPES OF SPINAL SURGERY

Spinal surgery can be divided into basic types on several premises, but the easiest way to look at it is the following:​ Surgery is broadly speaking designed to either take away pressure on nerves (decompressions) or to stabilise the spine (fixations, sometimes called fusion)​

Decompressions​

Small decompressions​

Large decompressions​

Fusions​

In situ​

Correction​

Mobility procedures​

Minimally invasive procedures​

Endoscopic procedures​

Biopsies​

Resections​

TREATING THE DISEASE

So, if having an operation is rarely required for chronic painful conditions, what are my options?

Well, this brings us to the question of what we call ‘the substrate’.

In medicine the substrate is frequently used to refer to tissue and in this instance, the substrate is your body. If your substrate is imbalanced and ill, you will be ill.

The concept of homeostasis is crucial. The word homeostasis refers to the balance of the systems of your body.

When your substrate is in homeostasis, then your substrate will be healthy.

In people who live in pain, the imbalance is caused, in a large part, by inflammation. When your substrate is inflamed, your body is out of homeostasis, and you will experience pain.

Therefore restoring balance to your body is by far the most important first step. The question is who can restore the balance in your body? Is it your doctor, your therapist, your family, your friends, or you?

Well it is easy. Whoever is present in your life the most and has the most influence on what you do, would be the perfect person to manage the homeostasis of your substrate. And that person, is you.

You are by far the most important person involved in restoring the homeostasis of your substrate.

When restoring the balance (homeostasis) of your substrate (body), the following are important:

  • DIETS AND MEALS TO COMBAT PAIN

    Dieticians play a vital role in educating patients in making informed and sound decisions regarding their nutrition. There is an increasing amount of literature discussing the importance of managing our inflammation levels when it comes to pain management. This needs to be managed through lifestyle as well as diet. A dietician can help you to reduce inflammation through your diet and become more plant-focused. 

  • MOVEMENT IS MEDICINE

    The more pain we have, the less likely we are to move, but if we want the pain to get better, we often need to reverse the cycle. This is tricky and may require help from pain therapists, such as occupational therapists and physiotherapists, to introduce graded exercise programmes.

  • THERAPY FOR PAIN

    ​The multimodal nature of pain equires a team to manage it and the rehabilitation 
    therapists play a major role in disease management and symptom control.

OTHER TERMINOLOGY YOU MIGHT HEAR

Referred pain
Referred pain is pain that is felt somewhere in the body that is distant to where the actual problem is. It is normally on the same side of the body, is felt deeply and normally relates to the strip of skin or muscles supplied by a specific nerve.​

Peripheral Sensitisation
Nerves outside the spinal cord or brain are known as peripheral nerves. These nerves tell your brain about every part of your body – your skin, muscles, joints, ligaments, tendons and organs. When something dangerous or potentially dangerous happens somewhere in your body, your brain wants as much information as it can get – these nerves become sensitive, sending more information, faster and more loudly. This process is known as peripheral sensitisation, and is a normal part of healing. ​

Central sensitisation
The central nervous system (brain and spinal cord) is your body's primary alarm system. Its job is to protect you from harm. When pain has been present for a long time, the alarm system becomes over-sensitive and starts protecting you from things that are not dangerous, like normal movement and normal work. This means that you now have more pain, more frequently, and you might have pain even when you are not doing much of anything. 

Central sensitisation is the term used to describe what happens to the nervous system (spinal cord and brain) when it becomes over sensitive.

Endogenous opioids
Opioids (like morphine) are some of the strongest medications we have for treating pain. Your nervous system is really good at producing its own (endogenous) morphine (opioids) when it thinks you are under threat. Exercise is one of the ways in which you can help your body produce its own morphine – this is why we say that movement is medicine!​

Sensitivity to physical activity
When your nervous system is working effectively to protect you from danger, exercise causes your brain to release happy hormones and natural morphine. When you have chronic pain, this system does not work as it should and exercise makes pain worse. This is called sensitivity to physical activity and means your nervous system is over-sensitive and is not producing natural morphine. Learning how much of what kind of exercise your body needs can help you reset your nervous system and teach it to produce your own morphine again.